My 20th birthday trip to Brighton 

Hi everyone, 
Hope you are all doing well, I would like to just say thank you for all the support that my first blog post received. This one is a little different to the last as it is about my recent trip to Brighton for my 20th birthday and how I coped with that and my conditions.
When someone plans a surprise trip for you it’s a lovely gesture, especially when your partner plans it for you in a place that you have wanted to go for years. However when someone who has a chronic illness hears surprise trip so many worries cross your mind:

do I need my crutches

How am I going to cope with all this walking 

Am I supposed to drive or are we getting a train

What shoes do I take to support my feet and ankles

Do I put my insoles in my shoes 

Is it going to be really cold?! (My circulation is not fab so I get really cold)
All of these things to worry about automatically makes you more anxious to go somewhere, luckily my wonderful boyfriend accidentally told me where we were going so I knew then that we would be getting the train, we would be going for 3 days and that way I could plan more as to what I needed. 
So we set off on the Monday me dragging my bright pink suitcase behind me and Ross carrying my coat and his bag like a true gent we went to get on the train and go to Brighton…it was the top place in the U.K. On my bucket list so I was so excited.
When we got to Brighton I found out that we were staying in the Hilton which is situated right on the sea front it was gorgeous, that and the weather was sunshine and 11 degrees which for a seaside town in the U.K. In February is pure bliss!
Our room was stunning and absolutely huge, with a sea view so I got to wake up on my 20th birthday (my birthday also happens to fall on Valentine’s Day) to watch the sunrise over the sea it was magical one of the most amazing experiences to date in my life. We went for a walk on the first day and found a little gelato shop in the lanes called “gelato gusto” they had a wide range of vegan ice creams which was perfect for me as I have dietary problems that come with my conditions. 
When I go travelling even on a 1 hour car journey I get super sleepy so you can imagine how I would have felt after 2 long train journeys and then also going for an explore that evening as well…then things got really fun….Ross got us lost so we spent 20 minutes walking in the wrong direction ( my hip dislocates every time I walk and I should use crutches for long distance) this being said I am stubborn as hell so chose not to take them with me…it’s safe to say I was grouchy at this point due to being lost so we called it a day and got an uber back to the hotel. 

I then ate so much that I went into a food coma as I had a waffle as big as my face *insert heart face emojis here* and a burger that was just incredible and this was all delivered to the hotel so I could sit in my knickers and eat in bed!! 
On Tuesday we got up early as it was my birthday and also Valentine’s Day! We had the fanciest breakfast in the Hilton and I made the mistake of going downstairs in no shoes and a scruffy jumper and leggings when everyone else was wearing a suit or equally as nicely dressed….my life is a major cringe fest 9/10 times. We then went for a wander all around Brighton I got the chance to make my own perfumes at Eden’s perfumes which was just incredible. The best part of them day however was going to ChoccyWoccyDooDah for birthday cake…me and Ross tackled the platter of cake that was designed for 4 people or as we like to say 2 very hungry people ( on this occasion it really was meant for 4 or more…we took 3 boxes of cake home) we also stopped into BOHO Gelato which is highly recommended by Zoella and she was certainly not lying the lady who served us was lovely and the gelato was just as good. 
We then went for a moonlit walk on the pier before having dinner at the hotel, I felt like a 10 year old again (not that it was that long ago) playing silly games such as the 2p machines and the claw machines it was incredible. 
By the time we got home on Wednesday all of the walking had certainly caught up with me…after all I had managed 30km in 3 days which is unheard of for me especially to do so with a smile still slapped on my face. 
The bit behind the smile though was the worst, especially when I got back to ross’ and had to face the 3 flights of stairs in his house. This is when these conditions are not glamorous at all I could not lift my feet off the floor and Ross had to then sit and undress me because my body refused to respond to me anymore. The fatigue had set in big time and so had the pain it washed over me like the waves of Brighton beach. I think even 2 weeks later I have only just recovered properly from all the walking. 
Right, I’m going to end the post here as I have pancakes waiting for me (ps I am writing this on pancake day) I hope everyone is bored of the site of pancakes by today when I upload! Keep an eye for the next post which should be coming on Saturday, I have some funny stories lined up for that one.
I hope you have enjoyed the post and feel free to follow/leave any comments if you have any questions I’ll be happy to answer and love the feedback! 

Signing off for now, 
Scarlett x

Chronic illness -my story

Hi everyone,

I wanted my first post to be a little bit about me and start with explaining my conditions and what they mean for me in day to day life. I am currently 20 years old and have been diagnosed with 3 chronic illnesses for 2 years now and registered disabled for 10 months.

I look very much like a “normal” person, this means that you can then become subjected to a lot of judgemental looks and comments and people going out of their way to make you feel uncomfortable (this in turn means anxiety and depression can creep up on you quite quickly)

My 3 conditions are Joint Hypermobility Syndrome, Fibromyalgia and Ehlers Danlos Syndrome type 3. Now you’re probably sat reading this thinking “how on earth do you pronounce these things” and also “what on earth are they”.

So let’s start with the Joint Hypermobility Syndrome this is a “normal” thing that most people will have as it is known as being double jointed this means that the joint in your body over extend and can lock and move in places they shouldn’t. It becomes a Syndrome when you have the chronic pain that comes along with it. This is mainly focused in the joints and makes things a lot more difficult to do in daily life. I was diagnosed with this in April of 2015 and just handed and leaflet and told to get on with it basically, and that it wouldn’t really effect me in my daily life.

Then came the Fibromyalgia and the Elhers Danlos Syndrome a year later, this was only diagnosed due to me fighting for a second opinion as it was believed there was more wrong with me than first expected. So Fibromyalgia is an interesting illness to have as it is mainly chronic fatigue and over sensitivity in the skin, for example if someone were to rub my back for a long period of time to console me it would feel as though my skin is burning.

Elhers Danlos Syndrome is where your all of the above combined really but treated as a separate condition, this now means that when I walk I dislocate my hip partially and it means that my joints are more prone to dislocations than others.

Sorry if this has been really rambly but that’s the short version of all the conditions I have! I promise the next post will be something a bit more exciting about my recent trip to Brighton and how I coped with that and my conditions.

Signing off for now,

Scarlett