Date nights and junk food 

Hi Everyone,
I hope you are all doing well and enjoying the sunshine this week! 

My last blog post got a lot of love and I am so thankful for the support and love that everyone has shown to all of my blog posts. I am currently sat at work typing away on my lunch break, at the moment I spend most of my time writing or reading thanks to starting my blog. 

So this blog is going to be about this weekend and going out to a comedy show on Sunday night. I spend the majority of my time at Ross’s house during the week and also at the weekend, so on Saturday I went to pick up my new glasses and also went to look at some beds…I felt like a proper adult (sad I know). We then spent the rest of the day binge watching the walking dead and riverdale and eating junk food. 

My Saturday was not the most exciting ever as I was still trying to get over my concussion…I am literally the clumsiest person ever and I now genuinely think I need to baby proof any corner that is in the house so that I can’t fall into it!! 

That makes me think actually about all the little things that I miss being able to do like I used be able to, for example a girly thing that I used to enjoy was having a long warm bath with a lush product and being able to take my time with shaving my legs…now shaving my legs has become a task as it really hurts to bend and stand in the shower, I am no longer really able to have baths as they would make my joints seize and I can get stuck in the bath for ages.

I miss being able to get dressed on my own and not have anybody worrying about me that I might fall and hurt myself…I also get tired so easily so tights are now a mission to put on and I love wearing dresses and skirts so I still power on. 

I know to most, the above things are easy and you wouldn’t see them as a big deal, however being 20 and having 20% of the energy a “normal” person would have these things really get to me. I would say that, because I am quite a stubborn person I will continue on and not pace myself as I should, this is purely because I get so angry at myself because I want to be able to do the basic things in life again unaided and without having to worry. 

Anyway back to my weekend, on Sunday night we went to see Rob Beckett perform in Peterborough, my mum got us tickets to go for Christmas, I had already seen once before but wanted to go again seeing as I enjoyed it so much the first time. Me and Ross love nothing better than going out for really tasty food, we have a particular favourite restaurant called wildwood and they do the most incredible garlic bread with mozzarella and caramelised onions on top it is too die for and considering I have stomach problems and shouldn’t eat a lot of bread it comes at some price! 

So we went to wildwood for dinner and then went to a desert shop called Kaspa’s they do crepes and waffles the size of my head and it is the best. I have a very strong love for peanut butter as well so to find out they do a waffle drenched in melty peanut butter and fresh banana was music to my tiny lil ears. (I will insert a picture here use be warned it’ll make you hungry and jealous) 

So once we had finished eating and finding out that as per usual we had eyes bigger than our bellies we walked back to the theatre that Rob was performing in (which was quite nice as it meant I could walk off my food baby). 

Rob Beckett is utterly hilarious when he performs and he engages with the audience so much that 75% of his show is talking to people. Of course me being a magnet for awkward moments meant that I was the first victim he chose….he also called me an arsehole cause I’m a bit blunt but I found it hilarious. I also learnt that the hole in the ozone layer is getting smaller so even though it was a comedy show I learnt something new! 

After the show I then got the chance to meet Rob and have a picture taken with him so that was pretty cool! (I’ll put the picture below because I quite like it) 

I hope you guys had a good weekend as well I’d love to know what you all get up to especially those outside of the UK. Feel free to leave a comment and let me know how your weekends were I’m going to sign off now and binge watch the walking dead with Ross (my idea of my perfect night in)

Signing off for now! 

Scarlett x

Chronic Illness vs Hobbies 

Hi everyone, 
I hope you are all doing well. I also apologise that this one is up a little later than usual but I have spent the past few days recovering from concussion. 

I’m going to start off with some good news that I read this week, Fibromyalgia is now becoming a step closer to being seen as a long term disability…now to someone that does not have Fibromyalgia you would probably think why is ’tis a good thing? Well it means that people that have this are finally beating the doctors views that it is not that bad and that it is easy to live with. 

Anyway this weeks blog is going to be about how hobbies and work actually help me with all of this, I still work full time and am currently in a job that I love, I enjoy going to work everyday, this is so important because it means that I am able to put my medical problems to the back if mind and get on with a days work. If I were to sit at home everyday my depression and anxiety would have come on a lot quicker and would be a lot worse this would also be the case if I didn’t have Ross to look after me as well. 

I ave tried to make sure that I have kept on with my love of reading, from a young age me and my sister have always read books and I still see it as one of the most enjoyable things it do, you can lose yourself to your imagination and this means that I can put the pain to the back of my mind as much as possible. I currently have over 40 unread books sat on a shelf that I am slowly working my way through, I keep telling Ross that I won’t buy anymore books then gain new ones pretty much every month…

It is really important to try and keep in contact with your friends, and trust me being diagnosed with all of these medical problems really shows who your real friends are and who will just drop you because you can’t make plans or never feel up to going out. I am thankful that I do still have some of the most incredible people around me it makes dealing with all of this a whole lot easier…I feel so alone with all of this most of the time as there is not enough awareness out there not many people are willing to learn about it either so it can make you feel really alone. 

My favourite hobby of all however is sleeping…with chronic fatigue it is all about balance and pacing yourself, you need enough rest but also need to remain active, this is hard for a lot of people and these conditions will consume you if you do not have the willpower to fight against them. It is really hard to keep your willpower up I think I have a weekly breakdown where I just can’t face slapping a smile on and getting on with it.

That is my personal motto though….no matter how hard life hits you, slap a smile on and power through, it won’t always be this bad. 

I am going to sign off here, I’m off to see rob Beckett perform tonight and my fingers are hurting from all this time (the joys of being a spoonie) I’m gonna leave a picture of me below just so that you can Actually put a face to the writing!

Signing off for now
Scarlett x 

Invisible illness VS the general public

Hi Everyone, 
Hope you are doing well, I would like to start this blog by thanking everyone that has read my blog and has supported me so far. I have never really been one to talk about all of my health conditions publicly, I have always been seen as the person that is strong for everyone else and will put my problems behind me to help others. 

So far this has really been helping me towards releasing my emotions instead of bottling them up and then having my weekly Sunday night break down. Today’s blog post is about the wonders of the general public when it comes to invisible illnesses and disabilities (again I am not stereotyping all people just sharing my experiences). 

There have been many times in the past few months where people have managed to shock me beyond words. The first of which was when I had popped into town with Ross for a little while, and because I have a blue badge I am entitled to park in a disabled bay. However one lady clearly thought otherwise, as I got out of my car I had noticed her in my main mirror, she had purposely stopped behind my car to glare at me through her window. I turned to Ross and said have you noticed that lady, I thought it was quite rude to be completely honest, then what she did next made it 10x worse…as me and Ross went to walk past her car she rolled down her window and started to shake her head at me and tut. 

I am completely one for not prejudging people as I know what it feels like to be prejudged by everyone that looks at me, I used to hear people muttering under their breath about me using crutches to walk. Many people have said it was an attention seeking thing, in fact when I was in secondary school I used to get called a liar everyday when I would be taking my nurofen like they were sweets. 

I had another instance when I went to look at beds on Saturday (something I have now realised is not a 5 minute thing for someone with mobility problems…the memory foam ones literally eat me…it would take me an hour to get out of bed to get to work). So anyway, this man in the bed shop was showing me a lovely electronic mattress lifting bed with storage underneath (loved it but way above my price point) So he then went on to say that you can get the beds that you manually lift up, I looked at my friend and just said yeah that wouldn’t be any good for me (I’ve been told I shouldn’t even be lifting a full kettle of water let alone a double/king size mattress on my own). Now he would just not stop telling me that I would cope with it, this left me having to explain myself to a random stranger who did not need to know about my personal life. I recently came across a post on social media in which someone had written a really unkind note and placed it on a car windscreen, she had prejudged someone for using a blue badge and had assumed that she was using someone else’s blue badge because she “looked” perfectly healthy. 

The above types of things go along with the types of things that you should not say to a pregnant lady, it is really important that you think before you speak, for someone like me who struggles with anxiety as well as all of my other conditions my self esteem is very low. Something that you say to someone could cause lasting damage, you may think it’s a laugh or a joke at the time like I will nine out of ten times laugh off a rude or ignorant comment if it is said to my face…this doesn’t mean it doesn’t effect me and the way that I think about things in the long run.

If you take one thing from all of my posts, I would want it to be that people take more time and care before judging someone. And most importantly think before you speak, this is something that is taught from a young age in school and is something that should be instilled in our brains but sadly this can not be said for everyone. 

Don’t get me wrong most of the people that I have met and spoken to about my problems have been very understanding but this is after you sit for half an hour and explain everything in detail and I am thankful that I have the opportunity to educate people about all of this as it is not something that is openly talked about normally. 

Anyway I am going to sign off here, I hope you have enjoyed this post. Please go ahead and share it with your friends and let me know what you think! If you want to follow me on social then my user names are listed in my about page. 
Signing off for now
Scarlett x